The studies presented at the HTRS Scientific Symposium showcase some of the many ways PicnicHealth is partnering with leading researchers to deliver robust real-world evidence and improving patient care across different therapeutic areas, including rare diseases, hematology, immunology, neurology, and oncology

If you’ve been diagnosed with IgAN or suspect that you may have the disease, finding a knowledgeable and experienced nephrologist or IgAN specialist is crucial to managing your symptoms and receiving appropriate treatment. But where do you start?

PicnicHealth | Does a recent FDA approval signal changes for the wider industry when it comes to RWE?FDA approvals supported by Real-World Evidence (RWE) are rising. Life science companies would be remiss not to consider including evidence on the natural history of disease, unmet medical need, and/or patient-reported outcomes in their regulatory strategies. PicnicHealth has extensive experience helping life science companies execute strategies to leverage Real-World Data (RWD) and incorporate RWE into their research and business planning. Uncovering experiences and outcomes from real patients is at the heart of it all. Contact us to discuss how we can partner on confirmatory evidence studies to strengthen your regulatory submission.

IgA nephropathy (IgAN) is a kidney disease that can cause inflammation and damage to the kidneys due to the deposition of the immunoglobulin A (IgA) protein in the tiny filters in the kidneys, called ‘glomeruli’, which can lead to kidney dysfunction. The diagnostic process for IgAN usually involves a combination of tests to evaluate kidney function and determine the extent of damage.

A kidney transplant is a surgical procedure where a healthy kidney is placed into a patient whose kidneys no longer function properly. The healthy kidney comes from either a living or deceased donor. End-stage renal disease occurs when a patient’s kidneys lose the ability to filter fluid and waste from the body, leaving harmful levels of waste behind.

IgA Nephropathy (IgAN), also known as Berger’s disease, is a rare kidney disease that can cause issues with the kidneys’ ability to filter waste from the bloodstream. IgAN occurs when a compound called immunoglobulin A (IgA) builds up in excess within the kidneys, resulting in inflamed tissue and other complications. Thanks to modern treatment methods, IgAN can be effectively managed and its prognosis significantly improved. However, if left untreated, IgAN can lead to serious health problems, underscoring the importance of timely diagnosis and treatment.

The COVID-19 pandemic has had a significant impact on the lives of millions of people worldwide, including those with chronic conditions such as IgAN. Although there is limited research on the effects of COVID-19 on people with IgAN, it is crucial to take precautions and seek medical attention if you experience symptoms.

IgA nephropathy, also known as IgAN or Berger’s disease is a type of kidney disease that occurs when there is an excess build-up of immunoglobulin-A (IgA) within the kidneys. If left untreated, this can cause inflammation of the kidneys and other complications that reduce the kidneys’ ability to efficiently filter waste products from the bloodstream.

IgAN, or IgA nephropathy, is a chronic kidney disease affecting millions worldwide. Despite its prevalence, many patients struggle to understand the symptoms of IgAN and how to manage the condition effectively. ‍This is a problem that the team at PicnicHealth is working hard to solve. Founded by Noga Leviner in 2014, PicnicHealth was created by a fellow patient to empower others to take complete ownership of their health records and manage their conditions confidently. In this guide, we will explore the symptoms of IgAN, also known as Berger’s Disease, and provide helpful tips for managing the condition.

This webinar explores relevant examples of how Data Science and Digital Health are accelerating pharmaceutical innovation and driving impact for patients. Bringing together global experts with diverse perspectives spanning regulatory, R&D and health tech, this conversation highlights innovative, RWD-driven approaches to drug development and regulatory decision-making. Najat, Noga, Jesper, and Evelyn discuss the need for different types of data to construct a complete clinical picture – and how a data-driven approach can drive impact across both research and clinical practice.

Sometimes, my experience with IBM leaves me feeling amazed at how hard it is to figure everything out.

It’s important us PA parents keep using our voices to push for more research.

Our world had turned upside down, our ground had shifted below us, and we were trying to grasp at anything to hold on to.

We sat down with Evelyn Pyper, Senior Evidence Strategy Manager at PicnicHealth, to talk about successes, limitations, and areas for growth within the wearables industry.

PicnicHealth is launching a four-part webinar series that aims to reframe the “ROI” for RWE generation and tackle the question: beyond the return on investment for RWE, what is the risk of inaction?

At the heart of genetic counseling is empowering patients and families with knowledge of genetic disease and being a supportive pillar as they navigate their journeys.

2022 was the biggest and most exciting year yet for PicnicHealth - not only for our team, but for our Change Champions, PicnicHealth users, and research partners. We want to thank everyone for being a part of this incredible community and making this past year possible. Before we jump into 2023, join us as we look back at our favorite moments of last year. We raised $60 million in Series C funding! PicnicHealth is ecstatic to have raised a $60m Series C to help build deep, complete, and clinically-rich real-world datasets in several new diseases. The team spent the year growing our research program portfolio, connecting with new patient populations to initiate new studies; introducing new capabilities to our patient app to make it easier for patients to tell us more about their experiences by completing surveys, diaries, and more; and building new data features to help researchers gain new insights faster.

As a bleeding disorder, Hemophilia has the potential to create some serious problems for the patients that live with it every single day. Without the ability to properly clot your blood, it can be difficult to take many risks that could lead to excessive bleeding. Plus, this bleeding can occur internally at just about any time. This can significantly lower the patient’s overall quality of life, but there is a chance that it doesn’t have to be that way.

Mental health can mean a lot of different things to different people with seemingly vague definitions. MentalHealth.gov takes broad strokes to include emotional, psychological, and social well-being at the interface of how a person thinks, acts, and feels. Indicators that something is out of balance can present with a number of uncomfortable behaviors including having low or no energy, having unexplained aches or pains, or experiencing severe mood swings. It would be difficult to look through the entire list of possible symptoms and not relate at some level at some point in time, suggesting that mental wellness is just one fabric to the many layers that influence how we function on any given day. Unresolved or persistent mental health issues can lead to a diagnosis of mental illness, but it feels more fluid than other conditions or diseases that use more measurable diagnostic criteria such as abnormal lab values or imaging modalities to diagnose.

PicnicHealth’s research partners Roche-Genentech and other key opinion leaders in the hemophilia space presented data from PicnicHealth’s Hemophilia Cohort in an oral podium presentation and poster session at ASH 2022.

I'm beginning to understand a lot of the things that are going on with my body and things that I can do to have at least a little bit of agency.

Caring for a loved one diagnosed with Alzheimer's can be overwhelming. However, in-home care can provide patients with a safe and comfortable environment and allow them to retain some degree of independence.

Managing an Alzheimer's diagnosis, whether it's yours or that of a loved one, can feel incredibly overwhelming, isolating, and just plain difficult. These five content creators share their real experiences, tips, and resources with Alzheimer's.

Alzheimer’s disease is the world’s most common form of dementia, affecting more than five million Americans over the age of 65, and approximately 200,000 Americans under 65 who are diagnosed with early-onset Alzheimer’s disease. It is characterized by problems with memory, thinking, and behavior. If you or someone you care for has been diagnosed with Alzheimer’s, it’s important to learn about the disease and it’s different stages so that you can get the right treatment and support.

Alzheimer's is the most common form of Dementia and is characterized by how it impacts a human's behavior, thinking, and most importantly, memory. The symptoms can worsen over time, and the patient may have difficulty carrying out daily activities. Memory lapses, or mild memory loss, are usually one of the first signs of Alzheimer's disease and symptoms continue to worsen over time, although the rate at which the disease progresses can vary.

A diagnosis of Alzheimer’s disease or dementia for your loved one can be overwhelming. There’s a lot to think about, from medical care to emotional support, from daily logistics to planning for the future. Staying organized with paperwork may seem minor, but for caregivers, it can make everything you’re dealing with a lot more manageable.

Every milestone is so much bigger to us because he does things we thought alpha-mannosidosis might not ever allow him to do.

At the 38th Congress of the European Committee for Treatment and Research in Multiple Sclerosis PicnicHealth data was featured in two posters presented by our research partners. Continue reading below for more information on how your contribution is supporting leading Multiple Sclerosis researchers.

PicnicHealth Gives Back has returned for another year! Every time a patient contributes to a PicnicHealth research study, PicnicHealth will donate to a patient advocacy group until December 31, 2022.

November 24th, 2022 is National Family Health History Day (also known as National Family History Day) — a day to raise awareness of familial health.

Patient-centric real-world data and evidence are especially conducive to accelerating research of neurodegenerative diseases.

PicnicHealth joined industry leaders as a Silver Sponsor of the MarketsandMarkets Real-world Evidence and Life Sciences Analytics Conference. View our featured presentation "Let's Get Direct: How working directly with patients optimizes delivery of complete RWD".

We are excited to announce the launch of our new Alzheimer’s Disease and Alzheimer’s Disease Related Dementias (AD/ADRD) Research Cohort, a patient-centric real-world data source that provides comprehensive data to enable your therapy’s evidence goals.

Webinar: PicnicHealth's patient-centered approach to real-world data collection

DIA RWE is focused on the broader scope and challenges of reframing clinical investigation using RWE. Here are a few of the key takeaways from a stimulating and engaging conference.

To me, having achondroplasia isn’t what makes me beautiful. It’s one part of my life.

PicnicHealth, a patient-centered health technology company, and Bristol Myers Squibb are working together to leverage real-world evidence to study symptomatic obstructive hypertrophic cardiomyopathy patients within the DISCOVER-HCM Registry.

I am just trying to be as honest as possible... Growing up having this disease has been pretty rough.

As life science continues to benefit from a growing number of real-world data sources, from EHRs and claims to PROs and devices, organizations must weigh two factors. One is whether an individual data source is structured to support their clinical and business needs. The other is why a patient-centric approach unlocks the true power of traditionally siloed data

Being born with a disability that has evolved or progressed in my lifetime, I’ve had to adapt to every moment.

MMA is such a small part of the picture of what her life looks like, and now we can really just bask in the joy of Callaway experiencing life.

Alzheimer's disease is a progressive, degenerative brain disorder that causes problems with memory, thinking, and behavior. The earliest symptoms of Alzheimer's usually begin to appear in people in their late 30s or early 40s, but because they are often mistaken for other health conditions, they may not be noticed. As the disease progresses, it becomes increasingly difficult to diagnose and treat accurately.

Maria Montessori is famous for revolutionizing child development and education, but people of all ages can benefit from the Montessori approach, especially when learning new things. Applying Montessori principles to Dementia Care doesn’t infantilize people living with Dementia. Similarly to children, it empowers them to be independent and creative. For people living with Dementia, each day is an opportunity to rebuild, discover, and learn, and it’s on us to support them. If we embrace this growth mindset, imagine the possibilities.

Five years into her mother, Linda’s, mixed dementia diagnosis, Patti LaFleur made the decision to have her mother move in with her and stepped into the full-time caregiver role. A former kindergarten teacher, Patti had no prior experience as a caregiver. What she did have, however, was love and gratitude for her mother and the confidence that they would figure things out together.Patti’s raw and honest account of caring for her mother has inspired the caregiving community on social media. In addition to care tips, she’s shared her mom’s infectious laughter, their beautiful partnership, and how they’ve overcome obstacles. We sat down with Patti to learn more about her caregiving journey and the insights she has gained.

Alzheimer's disease is a progressive, degenerative brain disorder that causes problems with memory, thinking, and behavior. The earliest symptoms of Alzheimer's usually begin to appear in people in their late 30s or early 40s, but because they are often mistaken for other health conditions, they may not be noticed. As the disease progresses, it becomes increasingly difficult to diagnose and treat accurately.

Mental health is becoming a greater part of the conversation among the rare disease community and its supporters.

Those first few hours were tough; we were asking questions nobody could answer because MMA is rare.

I believe that advocates are quintessential parts of the ecosystem for change because they inform lawmakers and health leaders of outdated policies and healthcare priorities.

Dr. Kimberly Chapman of Children’s National Medical Center sat down with AllStripes to discuss how she became an expert in MMA and PA and how de-identified data from medical records and the JUMP study will contribute to the MMA and PA research landscape.

Diversity and inclusivity in medical research are important, and yet, clinical trials tend to enroll a population skewed towards White. Real-world data can be part of the solution by removing barriers that limit representation across racial and ethnic groups.