PicnicHealth’s research partners Roche-Genentech and other key opinion leaders in the hemophilia space presented data from PicnicHealth’s Hemophilia Cohort in an oral podium presentation and poster session at ASH 2022.

I'm beginning to understand a lot of the things that are going on with my body and things that I can do to have at least a little bit of agency.

Caring for a loved one diagnosed with Alzheimer's can be overwhelming. However, in-home care can provide patients with a safe and comfortable environment and allow them to retain some degree of independence.

Managing an Alzheimer's diagnosis, whether it's yours or that of a loved one, can feel incredibly overwhelming, isolating, and just plain difficult. These five content creators share their real experiences, tips, and resources with Alzheimer's.

Alzheimer’s disease is the world’s most common form of dementia, affecting more than five million Americans over the age of 65, and approximately 200,000 Americans under 65 who are diagnosed with early-onset Alzheimer’s disease. It is characterized by problems with memory, thinking, and behavior. If you or someone you care for has been diagnosed with Alzheimer’s, it’s important to learn about the disease and it’s different stages so that you can get the right treatment and support.

Alzheimer's is the most common form of Dementia and is characterized by how it impacts a human's behavior, thinking, and most importantly, memory. The symptoms can worsen over time, and the patient may have difficulty carrying out daily activities. Memory lapses, or mild memory loss, are usually one of the first signs of Alzheimer's disease and symptoms continue to worsen over time, although the rate at which the disease progresses can vary.

A diagnosis of Alzheimer’s disease or dementia for your loved one can be overwhelming. There’s a lot to think about, from medical care to emotional support, from daily logistics to planning for the future. Staying organized with paperwork may seem minor, but for caregivers, it can make everything you’re dealing with a lot more manageable.

Every milestone is so much bigger to us because he does things we thought alpha-mannosidosis might not ever allow him to do.

At the 38th Congress of the European Committee for Treatment and Research in Multiple Sclerosis PicnicHealth data was featured in two posters presented by our research partners. Continue reading below for more information on how your contribution is supporting leading Multiple Sclerosis researchers.

PicnicHealth Gives Back has returned for another year! Every time a patient contributes to a PicnicHealth research study, PicnicHealth will donate to a patient advocacy group until December 31, 2022.

November 24th, 2022 is National Family Health History Day (also known as National Family History Day) — a day to raise awareness of familial health.

Patient-centric real-world data and evidence are especially conducive to accelerating research of neurodegenerative diseases.

PicnicHealth joined industry leaders as a Silver Sponsor of the MarketsandMarkets Real-world Evidence and Life Sciences Analytics Conference. View our featured presentation "Let's Get Direct: How working directly with patients optimizes delivery of complete RWD".

We are excited to announce the launch of our new Alzheimer’s Disease and Alzheimer’s Disease Related Dementias (AD/ADRD) Research Cohort, a patient-centric real-world data source that provides comprehensive data to enable your therapy’s evidence goals.

Webinar: PicnicHealth's patient-centered approach to real-world data collection

DIA RWE is focused on the broader scope and challenges of reframing clinical investigation using RWE. Here are a few of the key takeaways from a stimulating and engaging conference.

To me, having achondroplasia isn’t what makes me beautiful. It’s one part of my life.

PicnicHealth, a patient-centered health technology company, and Bristol Myers Squibb are working together to leverage real-world evidence to study symptomatic obstructive hypertrophic cardiomyopathy patients within the DISCOVER-HCM Registry.

I am just trying to be as honest as possible... Growing up having this disease has been pretty rough.

As life science continues to benefit from a growing number of real-world data sources, from EHRs and claims to PROs and devices, organizations must weigh two factors. One is whether an individual data source is structured to support their clinical and business needs. The other is why a patient-centric approach unlocks the true power of traditionally siloed data

Being born with a disability that has evolved or progressed in my lifetime, I’ve had to adapt to every moment.

MMA is such a small part of the picture of what her life looks like, and now we can really just bask in the joy of Callaway experiencing life.

Alzheimer's disease is a progressive, degenerative brain disorder that causes problems with memory, thinking, and behavior. The earliest symptoms of Alzheimer's usually begin to appear in people in their late 30s or early 40s, but because they are often mistaken for other health conditions, they may not be noticed. As the disease progresses, it becomes increasingly difficult to diagnose and treat accurately.

Maria Montessori is famous for revolutionizing child development and education, but people of all ages can benefit from the Montessori approach, especially when learning new things. Applying Montessori principles to Dementia Care doesn’t infantilize people living with Dementia. Similarly to children, it empowers them to be independent and creative. For people living with Dementia, each day is an opportunity to rebuild, discover, and learn, and it’s on us to support them. If we embrace this growth mindset, imagine the possibilities.

Five years into her mother, Linda’s, mixed dementia diagnosis, Patti LaFleur made the decision to have her mother move in with her and stepped into the full-time caregiver role. A former kindergarten teacher, Patti had no prior experience as a caregiver. What she did have, however, was love and gratitude for her mother and the confidence that they would figure things out together.Patti’s raw and honest account of caring for her mother has inspired the caregiving community on social media. In addition to care tips, she’s shared her mom’s infectious laughter, their beautiful partnership, and how they’ve overcome obstacles. We sat down with Patti to learn more about her caregiving journey and the insights she has gained.