Once devoted to his job, he is now devoted to supporting others with myositis.

Nicole's daughter Olivia is living with CDKL5, a rare disease characterized by frequent seizures. She has some advice for other parents raising rare children.

The Children’s Tumor Foundation, an AllStripes partner, is on a mission to show the value of patients’ voices and inclusion in the decision-making process.

Gary was diagnosed with PSP, a rare disease that often presents with symptoms similar to Parkinson’s disease. He’s struggled with the condition, but also the feelings of isolation and frustration that accompany it.

PicnicHealth doctor and founding team member Gillian Hanson uses her own experience as a patient to help the hemophilia community and other disease communities for PicnicHealth.

After their daughter Iris was diagnosed with the rare disease GM1, Douglas and Christine decided to find answers by forging their own path.

Mary and Jerry’s lives were forever changed when Jerry was diagnosed with the rare disease PSP. The choices he's made since aim to ensure future PSP patients and caregivers don’t go through what they did.

Learn about the latest research into new treatments for paroxysmal nocturnal hemoglobinuria (PNH), including promising new drugs that have recently been approved by the FDA or are in clinical trials.

Learn about the latest research into new treatments for hemophilia, including several promising new drugs that are in clinical trials.

Myositis Support and Understanding Association provides patients and caregivers the platforms, programs and resources they need to thrive while living with a chronic and debilitating rare disease.

Learn about the latest research into new treatments for lupus, including several promising new drugs that are in clinical trials.

Learn about PicnicHealth's mission to support research into new treatments for sickle cell disease, and how we hope to support the sickle cell community.

Learn about research that's being done to find new treatments for multiple sclerosis (MS), including drugs like ocrelizumab, fingolimod, and glatiramer acetate.

Learn about personal health records (PHRs), including different types, like standalone PHRs and tethered or connected PHRs.

Learn about the benefits of electronic health records (EHRs) and how they can make the medical system more efficient and provide better care for patients.

PicnicHealth explains what electronic health records and electronic medical records are, including the differences between EHRs vs EMRs.

Learn about the difference between IBD vs IBS. Inflammatory bowel disease includes diseases like Crohn's disease and ulcerative colitis, whereas irritable bowel syndrome can cause pain but doesn’t lead to life-threatening complications.

Learn where to find medications in your electronic health records (EHRs) and electronic medical records (EMRs).

Hannah’s family was secretive about her condition and didn’t tell her all the ways it was affecting her health. As an adult, she advocates for mental health support.

People impacted by rare conditions already know what it’s like to make big adjustments for health reasons. Here's how three members of the rare disease community are using their unique perspectives to meet the challenges of COVID-19.

Get an overview on electronic health records (EHRs) and what is contained in your EHRs.

Hear the story of a real PicnicHealth user, Mapillar, and how PicnicHealth helps her manage medical care for her three children with sickle cell disease (SCD) and keep track of medical records.

Learn what is an electronic medical records and who owns your medical records.

Learn where to find your immunization records from your medical records and how you can get them to keep track of your vaccinations and immunizations.

Human connection is critical to all our mental health during this time. Here are a few creative ways to remind your friends and family you care.