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She Stumbled Onto Her Father’s Diagnosis While Studying PSP in Class
Dayna’s studies as a speech pathologist helped her push for a diagnosis for her father’s neurological condition, and gave him a voice as the disease progressed.
Patients
She Stumbled Onto Her Father’s Diagnosis While Studying PSP in Class
Dayna’s studies as a speech pathologist helped her push for a diagnosis for her father’s neurological condition, and gave him a voice as the disease progressed.
Patients
Why Is Drug Development for Rare Diseases So Challenging?
Drug development's existing challenges can be even more complex for rare conditions.
Patients
Why Is Drug Development for Rare Diseases So Challenging?
Drug development's existing challenges can be even more complex for rare conditions.
Patients
This Mom With CIDP Is Fighting for Answers
Carrie Szeles was told many times “you’re crazy” for thinking something was seriously wrong with her health. Now, she’s often told she doesn’t “look sick.” Through it all, she had to learn to be her own advocate and strongest supporter.
Patients
This Mom With CIDP Is Fighting for Answers
Carrie Szeles was told many times “you’re crazy” for thinking something was seriously wrong with her health. Now, she’s often told she doesn’t “look sick.” Through it all, she had to learn to be her own advocate and strongest supporter.
Patients
Finding Joy and Community in the Midst of a Sanfilippo Diagnosis
Elise was just weeks away from giving birth to her second daughter when she learned her five-year-old, Keira, had a rare, fatal genetic condition.
Patients
Finding Joy and Community in the Midst of a Sanfilippo Diagnosis
Elise was just weeks away from giving birth to her second daughter when she learned her five-year-old, Keira, had a rare, fatal genetic condition.
Patients
This Mom of a 7-year-old With Hunter Syndrome Is Fighting for Her Family
Ashly built her career as a speech therapist helping children with complex needs. Now, she’s advocating for her own child — and generations of her family to come.
Patients
This Mom of a 7-year-old With Hunter Syndrome Is Fighting for Her Family
Ashly built her career as a speech therapist helping children with complex needs. Now, she’s advocating for her own child — and generations of her family to come.
Patients
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